Laughing at My Nightmare by Shane Burcaw

Reviewed by Lori

Laughing at My Nightmare

Title: Laughing at My Nightmare

Author: Shane Burcaw

Perma-Bound Catalogue #: 96571

Description: A twenty-one-year old with spinal muscular atrophy describes the challenges he faces in completing everyday tasks and shares stories about growing up and living with this rare neuromuscular disease.

Rubric Rating: Level 3 - Laud it.

Why I Read it: Great title and cover.



Lori's Notes: It was the title of this book that piqued my interest.  As someone who generally tries to look on the bright side of life the idea of laughing at a nightmare really appealed to me.  The book is based on Shane Burcaw's blog of the same name.  I actually started reading the blog before getting the book.  I quite enjoy Shane's writing style.  He is quick and witty and I had moments where I laughed out loud.  Shane was diagnosed with spinal muscular atrophy as a child  It is a disease that makes his muscles progressively weaker.  However, this has not stopped Shane from doing anything and everything that his friends have done, even if it means doing it a little bit differently.  From early childhood to his early 20s this book details some of the unique and not-so-unique issues that Shane has faced, such as bladder control, anxiety about oral presentations, and the desire for a girlfriend.  Shane's resiliency and humour in the face of most situations make him an inspiration for anyone who faces their own nightmare, whether it is mental, social or physical.  Laughter really is some of the best medicine.

Recommended Readers: High school - any grade.  Warning - there is some swearing and sexual situations.  Mostly humorous.

Themes: Non-Fiction, Neuromuscular disease, Living with a physical disability, humour, biography, motivation and inspiration, Siblings, Families, Friendship, Relationships, Equity and Diversity.

Cross-Genre Links: 
Search: Neuromuscular disease, Disability and Accessibility, Inclusivity
Music: Man in Motion performed by John Parr
Movie: The Secret Garden (1993)
Blog: Laughing at my Nightmare

Inquiries and Activities: 

  • Do some research on neuromuscular disorders.  What are they and what issues can they cause?
  • How does staying/being positive help Shane deal with difficult situations?
  • Have you ever faced a "nightmare?" How would positivity/humour help you face your fears?
  • Shane's brother really assists and helps cater to Shane's needs.  How might this affect their relationship?
  • How accessible and inclusive is your school?  What changes could you make to improve it?
  • Write a draft proposal for your suggested changes.  If warranted, present your proposal to the student council or school board.
  • Write a joke that might make someone feel better or laugh.

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